November is epilepsy awareness month . . .

Posted: October 31, 2010 in Epilepsy
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November is National Epilepsy Awareness Month.  The Epilepsy Foundation is launching a nationwide campaign to make 1 million Americans seizure smart this November.  We need you to help us spread the word!

The campaign is called “Get Seizure Smart.”  More information can be found at http://www.epilepsyfoundation.org/neam/ Take the quiz and see how much you know about epilepsy

For those of you that have followed me either on Twitter or Facebook, this is old news.  For those of you that are new to me Epilepsy is a very important topic in my life.  My son, J.O., has epilepsy, along with a number of other health issues.  He was diagnosed when he was 3 1/2.  It was a terrifying event for both of us.  For the next 4 years we struggled to get any type of  relief from the seizures, which had been occurring multiple time every day.  We saw many specialists and went to multiple clinics for evaluation, including Children’s Hospital in Columbus, OH, Cleveland Clinic, OH, Mayo Clinic, MN and Minnesota Epilepsy Center which is in St. Paul.  The neurologists tried many different antiepileptic drugs for the purpose of gain some control of the seizures.  The drugs were scary and had major side effects.  In 2004 J.O. had surgery to implant a Vagal Nerve Stimulator (VNS) for the purpose of either stopping seizures or lessening their severity.  After a few months it was successful in eliminating his most severe seizures.  Yet he was still having myclonic seizures.  Finally our neurologist found a combination of drugs that almost eliminated the seizures.  Occasionally J.O. will have one, but now the instances are one seizure for every two weeks or so.  What an improvement?

So that is where my passion comes from regarding epilepsy.  For the next month I will share some facts about epilepsy and you can be one of the Americans that are seizure smart.

More to come . . .

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