March is a big month for those with epilepsy. It is a time that we share information about what epilepsy is, how it affects people and the research that is happening. It is also when the Epilepsy Foundation has it National Walk for Epilepsy, which occurs on March 26th, 2011.
For those of you that have read some of the posts on this blog or followed me either on Twitter or Facebook, you probably know that epilepsy is a very important topic in my life. My son has epilepsy, along with a number of other health issues. He was diagnosed when he was 3 1/2. It was a terrifying event for both of us. For the next 4 years we struggled to get any type of relief from the seizures, which had been occurring multiple time every day. When I say multiple times, I mean 20 or more times every day. We saw many specialists and went to multiple clinics for evaluation, including Children’s Hospital in Columbus-OH, Cleveland Clinic- OH, Mayo Clinic-MN and Minnesota Epilepsy Center which is in St. Paul. The neurologists tried many different antiepileptic drugs for the purpose of gain some control of the seizures. The drugs were scary and had major side effects.
In 2004 my son had surgery to implant a Vagal Nerve Stimulator (VNS) for the purpose of either stopping seizures or lessening their severity. After a few months it was successful in eliminating his most severe seizures. Unfortunately he was still having myoclonic seizures. Finally our neurologist found a combination of drugs that almost eliminated the seizures. Occasionally my will have a seizure, but now the instances are one seizure for every two weeks or so. What an improvement compared to before? Now you may understand where my passion comes from regarding epilepsy. For the next month I will share some facts about epilepsy and you know more about epilepsy. For now check out the Epilepsy Foundation Newsletter.
Even more important, check out your local Epilepsy Foundation and see if there are walking/running events that you can participate in. We need your help so that we can find a cure.
More to come . . .