Epilepsy is a journey . . .

Posted: March 9, 2011 in Epilepsy, Mind Flurries
Tags: , , , , ,

The journey began . . .
Emergency rooms
Ohio Children’s Hospital
Daily Multiple Seizures
Benign Rolandic Epilepsy
Doctors
Blood Tests
Short term EEG’s
Long term video EEG’s
Change in medication
Electrodes
Glue
Itching
Tears
Begging to go home
Daily Multiple Seizures
MRI’s
Cleveland Clinic
Another long-term video EEG
Research
More tears
And more research
EMG
Pain
Crying
Another change in medication
Daily Multiple Seizures
Pain
And more tears
Bravery
Specialists
This diagnosis
Daily Multiple Seizures
Another change in medication
And this diagnosis
Another change in medication
Specialist for movement disorders
Another long-term video EEG
More Medications
Side effects
Daily Multiple Seizures
Epitologist
Left Frontal Lobe Epilepsy
Fencing stance
Jacksonian marching seizures
Fear
Stress
Anxiety
IEP
And even more tears
Desperation
Daily Multiple Seizures
VNS
Mayo Clinic
Another short-term EEG
More medications
Eye blinking speed test
Involuntary movements
Frustration
Learning Disabilities
This neurologist
And then that neurologist
St. Paul Children’s Hospital
Daily Multiple Seizures
And more medications
Epilepsy Center
Several short-term EEG’s
Daily Multiple Seizures
Several long-term video EEG’s
Myoclonic epilepsy
And more medications
Cluster Seizures
And more combinations of medications
Non Epileptic Seizures
Still researching
 
And the journey continues . . .

March is the Epilepsy Foundation’s Walk for Epilepsy.  Come join us.

National Walk for Epilepsy

 

 

Sunday, March 27, 2011 – National Mall, Washington, DC

The 5th annual National Walk for Epilepsy® is a family oriented, non-competitive walk that winds around the monuments and museums on the National Mall.   The purpose of the Walk is to raise awareness of epilepsy; increase funds for much-needed programs for people with the condition; and help in the search for cures. Over the last four years, the Walk has engaged more than 25,000 participants and raised over $4 million. Please join us on the National Mall in Washington, DC on Sunday March 27, 2011 and enjoy a morning full of activities for the entire family.

This is a repeated post from November and I am reposting it since March is a special time.

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